Who Can Help

The Desmoid Tumour Research Foundation was set up in 2005 with the mission of aggressively funding research into Desmoid Tumours and providing people with support. They are based in America and provide a great resource.

Sarcoma UK is the largest Sarcoma charity in the UK providing support to thousands of Sarcoma people in the UK and financial contributions into research. They host a crucial free support line for anybody affected by Sarcoma and Desmoid Fibromatosis.

NHS Sarcoma centres UK

The Desmoid United Facebook group is set up and run by Desmoid Fibromatosis people for people and their families. This provides vital contact where you can connect with the community and a safe space to share your experiences.